Page 1: Information Sheet for Participants

Please read the following information about the study and decide whether you would like to take part.

What is the purpose of this study?

The purpose of this study is to explore transgender women’s beliefs and attitudes towards menopause and hormone replacement therapy (HRT), as well as their personal expectations and experiences. This survey is being conducted for an MSc at King’s College London (KCL), with the support of Emma Frankland and researchers from KCL. Theatre artist Emma Frankland is leading a new project called HEARTY, with None of Us Is Yet a Robot, exploring the experiences of trans women and their relationship to the bio-technology of HRT and the idea of menopause.

We hope that the study findings will provide knowledge to improve transgender healthcare and wellbeing, as well as identifying additional areas for enquiry in the future.

Why have I been invited to this study?

We would like to recruit self-identifying transgender women aged 18 years old or above, with the ability to read English fluently and access the internet. Your experiences and perspectives are very important and would help build awareness around people’s beliefs and experiences of menopause and/or HRT in the transgender community.

Do I have to take part?

You do not have to take part in the study, it is completely voluntary. Please only take part if you would like to. If you consent to the study, you have the right to withdraw from the study at any time by exiting out of the online survey link. However, it will not be possible to remove the answers that you have already submitted as part of the questionnaire. Your data will be anonymous and confidential.

What will happen to me if I take part?

You will be asked to complete a number of questions on your personal views and experiences of HRT and menopause. We will also collect background information, such as your age, ethnicity and employment status. The survey will take approximately 20 minutes to complete.

It is very important that you complete all the questions provided in one sitting as you will not be able to come back to the survey at a later time and pick up from where you left off. The survey is completely anonymous (i.e. no names asked) and voluntary, so please feel free to answer the questions honestly and openly. If you do not wish to answer a question, feel free to miss it out and go to the next question or page by pressing the ‘Next’ button.

What are the possible benefits and risks of taking part?

The benefits of taking part is that you will have provided important information about transgender women’s views, beliefs and experiences of menopause and HRT. The findings of this study will help build awareness of people’s experiences within the transgender community and the general lack of knowledge about transgender health in the medical system. It is hoped that this will lead to the implementation of appropriate actions to better support the healthcare and wellbeing of transgender women.

We do not envisage any risks or discomfort taking part in this survey. This study is considered a low-risk study and you should not be harmed in any way. However, some of the questions may feel quite personal and sensitive in nature. If you feel uncomfortable answering these, you are free to skip them and move on to the next question. If you feel the survey has made you feel uncomfortable in any way, you can contact the researchers who will be happy to speak to you. Please read the section below “What if I have further questions, or if something goes wrong?” for details. 

Will my taking part be kept confidential?

Yes. All information and answers that you provide will be confidential and will be anonymous. All data will be stored according to the Data Protection Act (1998). In the research report, identification of participants will not be possible. We may use your email address to contact you regarding the study, and follow-up studies, but your contact details will only be accessible to approved members of the research team.

What will happen to the results of the study?

The results from this study will be collected by the research team at King’s College London and then analysed statistically. The findings will be part of a dissertation research project for an MSc student. It will not be possible to identify you personally from the results of this study.

If you decide at any point that you no longer wish to complete the survey, you may exit the survey by simply closing the browser window. All responses you have provided prior to leaving the online survey cannot be removed and will be included as part of the data analysis. Therefore, pressing the ‘Next’ button after answering a page of questions implies consent for us to use this data as part of the results.

What if I have further questions, or if something goes wrong?

Should you have any queries about the study or research area in general, please contact the researcher directly using the contact information below.

Researcher: Sophie Mohamed, Email: sophie.mohamed@kcl.ac.uk

 

If this study has harmed you in any way or if you wish to make a complaint about the conduct of the study you can contact King's College London using the details below for further advice and information:

Supervisor: Dr Myra Hunter, Email: myra.hunter@kcl.ac.uk

 

Department of Health Psychology, King’s College London, 5th Floor Bermondsey Wing, Guy’s Hospital, London Bridge SE1 9RT

The survey was granted ethical approval from King’s College London Research Ethics Committee (LRU-16/17-4495).